Wednesday, November 5, 2014

two more surgeries...

So I know I haven't updated in awhile. Life took over. A lot of life. I got divorced. I reunited with someone. I moved. I moved again. I tried to live... still in pain. Still trying to manage it daily.

I re-tore my labrum in February 2014. Dr. P. Decided that a scope was my best chance. He found a significant amount of scar tissue, to the point he couldn't distinguish between the internal parts of my hip joint. He repaired the labrum. Removed part of the hip capsule and part of the synovial lining as well as more CAM impingement on the bone. I thought everything would be good and it was for a couple months. Then everything returned.

The increased pain, popping and decreased mobility. He told me I was beyond his realm of expertise and referred me back to Seattle to see Dr. Mayo, the Dr. who did my PAO in 2012. I go down on Monday and I'm absolutely terrified. They have me on the surgery schedule which I was initially told was for at a minimum a hardware/HO removal with an open joint clean up and to look at my labrum again but possibly a PAO revision. Steroid injections and physical exams indicate that the pain is still coming from the joint.

Oh yeah.. I was diagnosed with Ehlers Danlos Syndrome Hypermobility Type. I will also have more genetic testing done in Seattle to determine or rule out other types.

I am terrified of another technically successful but functionally failed surgery. I am terrified to hear there is nothing more they can do. I am just plain terrified. I feel like a burden. I feel like I'll never get better. I feel like a waste.

 Guess we'll see what they have to say next week...

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